Biopsy Results

My biopsy results for my alopecia diagnosis surprised me!

I got my biopsy results on Sunday and they were………………………….. inconclusive! This was the ensuing conversation with the dermatologist:

“So, is that unusual for the biopsy results to come back inconclusive?”

“No, not at all. They’re often inconclusive.” (What, really??)

“Oh….. So, what does that mean?”

“Well, it is saying you’ve got alopecia, but we don’t know what type. It could be frontal fibrosing alopecia or it could be another type of scarring alopecia. It doesn’t look like alopecia areata as that it more patchy hair loss all over.” (Well, I could have told you that!! So, all we’ve established is what we already knew a month ago!!)

“Right, so what happens now then?”

“I’ll ask the consultant if he wants to do a deeper biopsy, or not.” (Why on earth didn’t he just do a deeper biopsy in the first place if the more superficial ones are often inconclusive??)

“Right.” (I’m going private…)

So, I get home and dig out my private policy details. You may be wondering whether I haven’t used this before now. The reason is that my hair loss hasn’t progressed much (if at all – hard to tell) since July. I was already booked in for the biopsy with the NHS when I realised that I might was covered under a policy my ex husband had taken out. I decided that if I went private at that point, I would only end up having another biopsy, so decided to wait for the NHS biopsy results before I investigated the private route. Granted, the results from a private biopsy would have come back much faster (the NHS results took a month), but as my hair loss had slowed, there didn’t seem to be a rush.

Anyway, I rang BUPA and was given consultants’ names in my area etc. etc. and at the end of the phone call was told there was an excess to pay of £500 on the policy. What?! So, in actual fact, what I’ve decided to do is to press the NHS for a deeper biopsy and take it from there.

So, there we are! I’ll keep moving forward.

See you soon 🙂

Rachel x