Biding My Time

A list of the results & currently waiting for and what I’m doing in the meantime

At the moment I am just waiting…….

I am waiting for:

  1. My biopsy results to come back (another two weeks I think) – these will confirm (or not) the diagnosis of frontal fibrosing alopecia
  2. My food intolerance test result – this should be back in about a week’s time and should highlight any food intolerances I might have, which may or may not have been instrumental in causing or increasing the rate of progression of my frontal fibrosing alopecia
  3. The effects of balancing my energies with acupuncture to be felt

I’m also continuing to:

  1. Eat healthily – apart from the odd sweet treat and glass of wine – well, a girl’s got to have a life!
  2. Include a lot of protein and iron in my diet
  3. Listen to meditations and take time out when I need to keep my stress levels low
  4. Use my essential oil blend on my scalp (as well as applying the prescription steroid lotion)
  5. Hang upside down to increase the blood flow to my head
  6. Have an Indian head massage once a week
  7. Take supplements for hair, skin and nails
  8. Use a chemical-free shampoo and conditioner

N.B. For more of what I’m doing to help slow the progression of frontal fibrosing alopecia, read my previous post

One thing I will say is that the steroid lotion is very thin and watery (although most definitely NOT water, as it smells very strong – a bit like nail varnish remover). When I apply it to my scalp, it can run down my face and into my ears. As it is a steroid, I am careful to wipe it off my face, as I know that steroids can thin your skin. I also have to be careful to remember not to apply it and then use my hairdryer on my hair, as it is highly flammable! The first dermatologist I saw said it has a very low success rate for frontal fibrosing alopecia, so I am wondering why I’m bothering to persevere with it. But hey ho, I’ll give it a try like everything else.

Acupuncture Update

An update on my acupuncture session – an attempt to halt the progression of frontal fibrosing alopecia

Wow amazing! (In brief)

The slightly longer version:

I turned up a little apprehensive, having never had acupuncture before. But I needn’t have worried at all. The acupuncturist was lovely and put me completely at ease. He spent the first hour and a half (!) talking through an taking notes on my background, lifestyle, eating habits, sleeping habits, relationships, stressful episodes, major life events, home life etc. etc. At the end of the questioning, he put many aspects of my life together and deduced that my fire and water elements were out of kilter. This isn’t exactly how he phrased it, but it’s more or less what he was saying. In fact, he explained that China (where he is from) and the eastern world have so many more words for certain spiritual and philosophical concepts that it was difficult to put it into English for me.

Yin Yang

Next came the part with the pins. First he felt my back and decided that the water element was more of an issue than the fire element. He spent some time feeling for the points to insert the pins before marking my back with a pen and inserting them. It didn’t hurt, as there are apparently not many nerve endings in the back, however, one of the pins did hurt when he inserted it. When I said ‘Ouch’, he said, ‘That hurt because it represents your heart, which has taken a battering recently’ (true).  He left in the pins in for a few minutes and then took them out. Next I lay down on my stomach and he inserted (and immediately removed again) two pins on my ribs. He explained that he was balancing the flow of energy by removing blockages. He mentioned that he felt there was a wood and metal blockage that needed removing. Finally, he inserted pins in my armpits. When he removed the final pin, I felt an electric shock go up my arm and into my hand. The acupuncturist said that was the sign that a big blockage had been removed. After each set of pins had been removed, he felt my pulse. Apparently, here he could feel whether the acupuncture was working and blockages were being removed. He said they were 🙂

acupuncture to help with frontal fibrosing alopecia

So, the big question… would the acupuncture help to halt the progression of my frontal fibrosing alopecia? I asked the acupuncturist who said he thought it have every chance of helping. He had previously mentioned that he thought it would have been triggered by stress, as every illness is usually a reaction to life events and the reactions they cause in our physical bodies (mmm… as I thought). He also said that by removing the blockages and allowing the free-flow of energies, he would be addressing my problems on an emotional, physical and spiritual level.

I found the whole experience strangely relaxing and fascinating, as the acupuncturist was so enthusiastic and knowledgeable. I have a lot of respect for eastern medicine, which tends to treat on a more holistic level, and I’m looking forward to going back for another two sessions.

Just found this and I think it explains quite well how Chinese medicine is based on 5 elements: wood, water, fire, metal and earth

Bye for now 🙂

Rachel x



Food intolerance testing and acupuncture to try and get to the bottom of the underlying cause of my frontal fibrosing alopecia

This week is a week of needles for me. Firstly, I’m taking a food intolerance test, which involves pricking my finger with a needle for the blood sample, and secondly, I’m having an acupuncture session. I’m trying both of these to see if I can pinpoint (see what I did there :-)) the cause/s of my frontal fibrosing alopecia.

Intolerance Test

It was suggested a while back by a GP that my eyebrow loss might have been cause by an allergy. This coupled with what I call ‘crepey eyelids’ – something which happens to my eyelids occasionally and without warning – has led to me taking allergy tablets on and off. I know food intolerance is slightly different to allergy, but a friend who also has frontal fibrosing alopecia says she has taken the food intolerance test and it has highlighted some intolerances, which she now excludes from her diet. She says that her hair has now stopped receding. Worth a try anyway!

The intolerance test my friend used and which I will be using (when I summon up the courage to prick my finger) is York Test. The test is in two stages. The first simply identifies whether you have any intolerances, with a positive or negative result. If you get a negative result you get your money back. This first test costs £24.99. The second test then tests for and identifies the food/s you are intolerant of from a range of 158 potential foods. You have a choice of which type of test you would like at this point and I have chosen the Food & Drink Scan for skin conditions (and other issues). The other options are the IBS Diet Programme and the Ideal Weight Programme. If you like, you can bypass the initial test, pay for the full test only and request that your blood sample is tested for on the correct programme for your symptoms. This is what I have done.


My holistic therapist friend has referred me to an acupuncturist. I’ve read that a lot of people with frontal fibrosing alopecia have tried acupuncture. As with the above, it’s worth a try. I’ve never had it before and don’t know what to expect, but I’m quite excited to find out. I’ll report back in another post!

See you soon 🙂

Rachel x