Back to Dermatology?

How I decided whether to go back to the dermatology clinic or not.

I realise I haven’t posted for a while, so a quick update on events for you…

I’ve been to see my GP twice since I blogged last. The plan was to take stock of how fast my hair is receding (or not) and then decide whether or not to have a referral back the dermatology. The up-shot is – I’m really not sure what my hair is doing. It looks like it has receded slightly more to me – and I can tell because I can still see the mark where I had the biopsy back in the summer. But actually it is only slight and in some areas, I think I see some new hairs – possibly. So, based on that, it’s definitely not worth bothering with a dermatology appointment. I’m glad because it’s a hassle and, although I’m sure they know their stuff, they don’t give much away – which I find a bit daft when a bit more information might help to solve the problem for me. I only found out at the second GP appointment, the other day, what the details of the results of my biopsy were. The doctor showed me the report, which said that the biopsy showed I had ‘mild chronic inflammation’. How on earth chronic inflammation can be mild I’ll never know. There was some more information, but as the scanned copy of the report was such poor quality, neither the GP nor myself could make it out. I think what it was basically saying though was that because the sample of skin used for the biopsy was so small, the results were inconclusive as to whether it was alopecia or not – which I had already been told by dermatology.

Until the NHS can afford to invest in proper systems (IT and communication systems), we, as patients, are stuck with a lack of information, unfortunately – unless we create a fuss, of course – a time-consuming and frustrating tactic (I speak from past experience).

I’ll update you on the rest of the goings-on and things I’ve tried to slow the rate of hair loss in the next few posts.

Bye for now!

Rachel x

4 thoughts on “Back to Dermatology?”

  1. I think I have this. Diffuse thinning and receding hairline. Dermatologists can’t decide and I have positive ANA so was on plaquenil for a while but got side effects. I itch all the time, pain on my scalp, eyebrow loss and hair on other parts of my body. Shaved hair short and scalp shows badly. My neckline is now creeping upwards. It’s hell and uncomfortable! Two biopsies. Last one indicated scarring alopecia but was dismissed by the very expensive and not nice London dermatologist. He said I should feel lucky I am not totally bald, but I am slowly getting there. So what gave you tried to help your hair situation? I am now giving minoxidil a go but I hate it. My nails are also ridged, are yours? This hairloss of mine means I shed excessively for over 3 years now and I don’t know why it suddenly happened. My rheumatologist thinks it was due to doing IVF – hormones and stress. Who knows. I have taken a year off from my rheumatologist but feel maybe I should go back as my hair is worse. Glad I found this blog!!! Losing hair is lonely, confusing, life changing, stressful and embarrassing to me. I need a wig but don’t want to wear one as I miss MY hair, my scalp hurts, and in over 3 years I can’t find a good one!

    Like

    1. Hello Vi. Thank you for getting in touch. It sounds like you have been through the mill with your hair loss. I’m no medical expert, as this blog is written purely about my own experience, however, there are definitely some things you could try. The ridged nails might indicate a malnutrition of some sort. Might be worth speaking to a nutritionist about this and taking the right supplements/adjusting your diet, as the nail ridges could be linked with your hair loss. I’ve personally tried all sorts to help prevent further hair loss (which is by no means as dramatic as yours – with an inconclusive biopsy). My other blog posts outline what I’ve tried, but the things I think are the most beneficial from what I’ve tried are upping protein in my diet, minimising my intake of cow’s milk (but taking a calcium supplement instead) and minimising yeast (where possible), taking the skin, hair, nails supplement perfectil, as recommended by my dermatologist), using natural shampoo and conditioner (no SLS,parabens etc.) and scalp massage/Indian head massage. Yours could well be a hormonal issue (I was told mine potentially was) or stress, as suggested by your rheumatologist. I don’t know how we can control hormones in our bodies, but I would say that minimising stress is a key factor in this. I have minimised my stress right down and take time out for me. I speak kindly to myself (as a friend would) and look after myself. As for missing your own hair – I totally understand. What I would say is that your hair changes over time naturally anyway. I have lots of dull grey hair now and I miss my lush shiny dark hair. I know losing hair is a different matter, but it puts it into perspective for me at least that looks (including hair) fade as a natural process of aging anyway. Someone I know has MS and the medication she takes to control this has meant she lost most of her hair. It was very sparse at one point, so she shaved it all off completely and embraced having no hair at all. She said it was liberating as she was no longer wasting time looking in the mirror at her hair. Shaving her hair off meant she could put it out of her mind and get on with her life. She has a couple of gorgeous wigs, but looks amazing wth or without hair anyway. It’s her personality that shines through and not what she looks like. I learnt from her story that the less I focussed on and stressed about my hair loss, the happier I was. I also think there’s a bit of mind over matter going on too, as once I started thinking positively, the hair loss seemed to halt. Sometimes focussing on what we don;t want to happen, just makes that thig more likely to happen – and it’s partly the reason why I haven’t updated this blog in a while. I would definitely persevere with findng a wig, but if you can’t find one or it hurts your scalp to wear one, then I think scarves are a lovely alternative and (possibly) softer on the scalp. I see a lot of women who wear these as a fashion statement and they look great. All the very best of luck Vi. I hope this has been helpful.

      Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s