I realise that in this blog I haven’t yet mentioned my age. I’m 51. I understand from what I’ve read that frontal fibrosing alopecia is a condition that typically affects post-menopausal women (although the condition is rare). Having gone through the menopause relatively early at 47, I’m definitely in the post-menopausal category. I’ve also read that FFA is possibly a hormone-related condition, although the exact cause hasn’t yet been determined. This would be consistent with the fact that it affects post-menopausal women. Menopause causes your estrogen and progesterone levels to significantly drop.
Up until this point I had been congratulating myself on how well I’d done with my menopause – only a year or so of night sweats, a bit of brain fog and a couple of years of HRT and it was all done and dusted with no lasting issues. Then early last year, I noticed that my right eyebrow had lost a lot of its hair and that the outer part of it was practically missing. I put it down to stress at the time, as I was experiencing a lot of stress in my personal life.
I didn’t really notice any significant hair loss from my head until this year when lots seemed to fall out at once. I’m not sure whether this is typical of FFA, which I thought was slow and progressive hair loss over time. Anyway, a lot fell out at once in July this year and since then has not grown back, as presumably the hair follicles have died. This has left my hair quite thin on the sides of my head above my ears.
At the same time a lot of my hair came out, I noticed that my body hair (on my arms and legs above my knees) seemed to have disappeared too. These parts of my body felt strange being totally smooth. These hairs do appear to have grown back now, but are finer and softer than they were before – and are almost imperceptible. My underarm hair seems to have gone much finer and softer too. The hair on my face has also been affected. My face feels totally smooth and I can’t see any hair on it, apart from a couple of strands of hair – one that has always grown from my chin and one that has always grown from my right cheek. These hairs used to be quite thick, but now they feel soft and thinner, like the hairs that have grown back on my arms and legs. Another thing I have noticed is that a few weeks ago I had no hair at all between my eyebrows (I always used to have a bit of hair here before a lot of my head and body hair fell out in July). Some of this has grown back, but again it is much softer and finer and you have to look very closely to see it. I have been putting my essential oil blend (see previous post) on my eyebrows, so this might have something to do with the regrowth.
My mum has said that hair loss is typical of the menopause and that lack of body hair is not unusual. From what I’ve read it relates to lack of estrogen. Obviously something else is happening as well though to bring on FFA, and it sounds like much more research needs to be done to find out the exact causes and symptoms of this condition.
Till next time 🙂