Slowing the Progression of FFA

My Attempts To Slow Down Frontal Fibrosing Alopecia

There’s quite a lot (I have discovered) that I can do to try and halt / slow down the progression of my frontal fibrosing alopecia.

  1. My hairdresser told me to eat more protein, such as chicken. I like chicken, so that Steak - good source of protein for frontal fibrosing alopecia managementone is easy. Someone else with the same condition has told me to eat more red meat – so for the first time the other day I cooked steak. In order to make sure I get a good quality protein every day, however, I have started taking spirulina powder in orange juice with my breakfast.
  2. The specialist who did my biopsy said to take iron. I had already researched this for myself and had been taking it for a couple of weeks prior to my appointment. Rather than take iron tablets, I have been taking wheatgrass, which is rich in iron. I add this to the spirulina in my orange juice.
  3. I have added two new drinks to my daily regime too. One is green tea, which I now drink all the time at home and is full of anti-oxidants. (At work I tend to stick to normal black tea.) The other is beetroot juice. Beetroot was mentioned by my hairdresser as being good for hair. When I looked it up online I found it contains protein, iron and nutrients such as manganese, copper, vitamin B6 and folic acid. Skin, hair and nails supplement for frontal fibrosing alopecia
  4. I am taking a supplement as recommended by the dermatologist I saw initially. It is for hair, skin and nails. Zinc is one of its active ingredients for hair. Among the other ingredients is iron, so I probably need to watch that I’m not taking too much iron. The one I use is called Perfectil, but there are supermarket own hair, skin and nails supplements too.
  5. I have a friend who is a holistic therapist. When she heard about my alopecia, she suggested a weekly Indian head massage to stimulate the hair follicles. On a Friday, she massages my head and then I massage hers. An added benefit is that the treatment is deeply relaxing.
  6. Searching about on the internet, I discovered a blend of essential oils that had been highlighted in a Scottish study to promote hair growth in 44% of the study group. The blend is as follows:

4 tsp. grapeseed oil + ½ tsp. jojoba oil
2 drops cedarwood essential oil
2 drops thyme essential oil
3 drops lavender essential oil
3 drops rosemary essential oil

My holistic therapist friend made up the blend of oils for me and I use them when             my hair needs washing, as the rest of the time I am using the steroid lotion I have               been given on prescription. This means that I apply the blend every two or three                 days.

  1. I have swapped to a shampoo and conditioner that don’t contain silicones, sulphates, parabens or colourants to try and minimise any further damage to my hair and scalp.Laptop
  2. I am taking more time to relax. For me this mainly means switching my laptop off earlier in the evening and going to bed on time. If I wake up in the night to have a little worry about my hair (or a million other things) and find I can’t get back to sleep, I listen to a meditation. I have a link to it on my phone so I can find it easily. The meditation I have chosen takes 20 minutes and helps to declutter your mind. It works as it calms me down and I often fall asleep listening to it.
  3. At night before I go to sleep, I hang upside down – not exactly like a bat, but with my head over the edge of the bed and my legs up the wall. The point is to get the blood to my head. I have no idea whether this is beneficial, but it feels like it might be and gives me something to do while I’m flossing my teeth!
  4. I used to enjoy swimming, but since I’d rather not get chlorine on my scalp at the moment, I have changed my exercise to walking. I do this whenever I get the chance (not that often), but some exercise is better than none to get the circulation going.

See you soon 🙂

Rachel x

 

3 thoughts on “Slowing the Progression of FFA”

  1. Hi. Have you had your Vit D levels checked? I had hair loss and testing done and it turned out my Vit D levels were low. After 6 months of prescription strength Vit D, and hair vitamins, my hair is thicker than ever. (Thick may be an exaggeration, but thicker for me). I had hair loss at the sides of my hairline around my face and top of scalp. Amazing watching it grow back!

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    1. Oo that’s very interesting – thank you. Yes, I did have them tested earlier this year and they were very low. I was put on a 7-week high-dose vitamin D. I’d only really lost my eyebrow at that point and the main hair loss occurred a few months after that. What I think possibly happened was being low in vitamin D weakened my hair follicles and when I had an intense period of stress April – July this year, the weakened hair follicles and the stress combined made my hair fall out around my face. Going on the vitamin D also cured my muscle and bone aches – and when I looked it up, a lack of vitamin D is associated with this too. Thank you so much for your comment 🙂

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